The Faces of APS

Wednesday, December 03, 2008

Volume 11 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!

The FALL/WINTER 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol11FallWin2008.pdf

The next volume will be coming out in late winter/early spring, 2009.

Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.

We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.


A patient story is as easy as writing your intro!

Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.

We could also use articles written by medical professionals or medical students. Please contact us if you are interested.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm

Thank you for your continued support!

Keyword: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter

Sunday, November 23, 2008

2008 APSFA Giving Tree


Welcome to our 3rd annual Holiday Giving Tree. This tree holds a special meaning for the members of the APS Foundation of America, Inc and the community it serves. In the past two years over $3000 were donated to the APS Foundation of America, Inc. during the holiday season.

Each ornament and present signifies a donation made to the APSFA in the name of an individual or group honored at this special time of the year. This donation will enable us to keep our unique non-profit organization operating and help promote awareness of APS.

All donations made by 12/31/08 towards the Giving Tree are tax deductible.

To make a donation and add an ornament to our tree click here: http://www.apsfa.org/givingtree.htm

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, holiday, fundraiser

*Exclusive* 2008 APSFA Holiday Ornament


This is an EXCLUSIVE holiday ornament for 2008. This design will not be available after December 31, 2008 so get it while you can! Each ornament bought will donate $2.00 to the APSFA.

$7.99

http://www.cafepress.com/apsfoundation/1952386

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, holiday, fundraiser

Sunday, October 12, 2008

Antiphospholipid Antibody Syndrome (APS) Focus Interview

You read about it in the newsletter and we did get in on the net in full!! Enjoy!

Monday, September 29, 2008

Volume 10 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!

Volume 10 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!

Hello!!


The SUMMER/FALL 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol10SumFall2008.pdf

The next volume will be coming out in November/December, 2008.

Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our support forum. (http://www.apsforum.com) So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.

We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org. If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.

Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm

Thank you for your continued support!

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter

Friday, June 06, 2008

June is Antiphospholipid Antibody Syndrome (APS) Awareness month




Antiphospholipid Antibody Syndrome (APS) is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.


The APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services. Our URL is http://www.apsfa.org

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, PSA

Wednesday, June 04, 2008

Volume 9 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!

Hello!!

The SPRING/SUMMER 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol9SprSum2008.pdf


The next volume will be coming out in August/September, 2008.


Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our support forum. (http://www.apsforum.com) So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.


We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.
Thank you to those people who have submitted articles.

If you have submitted an article and we have not used it yet, we will be using it in the near future.


Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm


Thank you for your continued support!

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter

Sunday, June 01, 2008

JUNE IS APS AWARENESS MONTH: GET IN THE FLOW!


FOR IMMEDIATE RELEASE

Date: 06/02/2008
Contact: Christina "Tina" Pohlman

Phone: 608-782-2626

Website Address: www.apsfa.org

Email Address: apsfa@apsfa.org


JUNE IS APS AWARENESS MONTH: GET IN THE FLOW!


The APS Foundation of America, Inc. (APSFA) has declared June as National Antiphospholipid Antibody (APS) Awareness Month. We are educating the public and medical community about this disorder, urging people to Get in the Flow!


This disorder threatens to become more common than Lupus and Multiple Sclerosis.

The APSFA is sending petitions to several states to make June APS Awareness Month. The APSFA will be attending conferences, medical seminars, grand rounds and health fairs to share the patient perspective and provide awareness of APS throughout the month of June and also encouraging the community to Get in the Flow.

Individual and APSFA fundraisers will be occurring throughout the country to help promote APS awareness and help support the mission.

Knowing more about APS can make all the difference. Get in the know and Get in the Flow!

The APSFA is the only United States health agency dedicated specifically to bringing national awareness to APS. We are a volunteer-run, community-based, non-profit organization.


For more information Contact:
Christina "Tina" Pohlman at Phone: 608-782-2626

Website Address: www.apsfa.org. Email Address: apsfa@apsfa.org


###


Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Friday, May 02, 2008

APS Awareness PSA

URL: http://www.youtube.com/watch?v=_Ib_0Gk94XI

APS is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.

The APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services. Our URL is http://www.apsfa.org

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, PSA

Sunday, March 23, 2008

Volume 8 of Our Newsletter, "Antiphospho...What?" is available for download!

Volume 8 of Our Newsletter, "Antiphospho...What?" is available for download!

The newest installment of our quarterly newsletter, "Antiphospho...What??" is available for download at this link:
http://www.apsfa.org/docs/APSFAVol8WinSpr2008.pdf

The next volume will be coming out in May, 2008.

Thank you to those people who submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.

We are in need of patient stories (esp about Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. Please submit articles to the following email address:
articles@apsfa.org.

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email add or email us using the email address below. We are open to any suggestions.

Please remember to check our website for any changes at the following link:
http://www.apsfa.org/new.htm

Thank you for your continued support.

Saturday, March 01, 2008

Deep-Vein Thrombosis (DVT) Awareness Program

Deep-Vein Thrombosis (DVT) Awareness Program
Featuring: Melanie Bloom, National Patient Spokesperson, Coalition to Prevent DVT

Date & Time: March 11, 2008, 2:00-3:00PM

Location: University of Utah School of Medicine, Salt Lake City, UT

Sponsored by: University of Utah Thrombosis Service & University of Utah 5 Med Nursing Staff

If you have any questions, please call 801-581-7818.

Click here to download a flier with more information about this DVT Awareness Month event.

http://www.clotcare.com/clotcare/dvt_awareness_month_march_2008.aspx#dvtawarenessunivutah

Sunday, February 24, 2008

Blood Clots and Blood Clotting Disorders: Key Issues in Diagnosis, Treatment and Prevention

Blood Clots and Blood Clotting Disorders:
Key Issues in Diagnosis, Treatment and Prevention
Saturday, March 1, 2008

Education and Discussion Seminar on Blood Clots
Patients, Family Members, Public and Health Care Providers are welcome

This seminar is FREE but registration before February 22nd is requested.

Hosted by

The University of North Carolina Thrombosis Program in conjunction with the National Alliance for Thrombosis and Thrombophilia and Duke University Thrombosis & Hemostasis Center

Location

Hilton Hotel
Raleigh-Durham Airport at Research Triangle Park
4810 Page Creek Lane, Durham, NC
(919) 941-6000

Agenda

Click here to download the complete program.

Registration Information

This seminar is FREE but registration before February 22nd is requested as space is limited. Registration includes breakfast, lunch and materials.

To register, please log on to
http://unchealthcare.org/bloodclotseminar. For questions, call Cheryl Jeanneret at 919-843-2568 or e-mail: cheryl_jeanneret@med.unc.edu.

Monday, February 18, 2008

GoodSearch.com Charity of the Day 2/28/08!

The APS Foundation of America, Inc will be featured as the Charity of the Day on GoodSearch.com on February 28, 2008!!

Please remember to use GoodSearch.com, the Yahoo-powered search engine, for all of your web searches as we receive a penny every time you do a search!!

And, please do all of your online shopping through GoodShop.com, the online shopping mall which donates a percentage of each purchase to us! Hundreds of great stores including Target, Gap, Best Buy, Barnes & Noble, Macy’s and ebay have teamed up with GoodShop and every time you place an order, you’ll be supporting us!

You can use GoodSearch and GoodShop every day, but be sure to check us out on the GoodSearch homepage on February 28, 2008!!

Sunday, February 17, 2008

New APSFA Cafe Press Coupon!


Here is a Cafe Press Coupon to help with your order:

Save $5

when you spend $50 or more!

-----------------------------
Enter the coupon code
CLOUTBUMPER
when checking out.
-----------------------------
Coupon expires 2/23/08... so hurry!


This is really a good coupon. Perfect time to purchase the log book, a t-shirt and tote bag. Check out our NEW designs!

Support APS & Lupus Awareness & the APSFA!

100% of the profits from these products will go to the APS Foundation of America, Inc.

To visit our Cafe Press Store click here: http://www.cafepress.com/apsfoundation



Brought to you by the APS Foundation of America

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS

Monday, January 07, 2008

Giving Tree 2007 - Thank You!





Thank you to everyone who donated to decorate our tree! Because of your generous donations, we were able to raise $1095 with this year's Giving Tree!

This tree holds a special meaning for the members of the APS Foundation of America, Inc and the community it serves. And since the Giving Tree was such a big success, we will be making this an annual tradition.

CLICK HERE to see our 2007 Giving Tree

Thursday, January 03, 2008

What is New On MissionFish This Week?

There are items on MissionFish right now some of you may be interested in purchasing. Direct link: http://www.missionfish.org/NPMMF/nphomepage.jsp?NP_ID=14582




Original 16x20 Oil PAINTing Winter Landscape snow tree
slim80craft2
Starting Bid: $18.99
15% donated to the APSFA
3d 7h 51m time left to bid as of this post


Original 8x10 Acrylic Painting Landscape COA blue green
slim80craft2
Starting Bid: $9.99
10% donated to the APSFA
3d 8h 23m time left to bid as of this post


Original Small Acrylic Painting Chickadee Bird coa
slim80craft2
Starting Bid: $8.99
10% donated to the APSFA
3d 8h 48m time left to bid as of this post


Original Small Acrylic Painting winter snow landscape
slim80craft2
Starting Bid: $8.99
10% donated to the APSFA
3d 8h 55m time left to bid as of this post